How long could a baby born with Harlequin disorder/disease live? - baby born congratulations
I've tried searching online but could find no answer. I have some videos on YouTube and had never seen her before, and now I'm curious. It is very, very sad and I do not see how a baby is born with a severe case, can live in the rule.
Sunday, January 17, 2010
Baby Born Congratulations How Long Could A Baby Born With Harlequin Disorder/disease Live?
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In the past, the disease was always fatal, whether due to dehydration, infection (sepsis), restricted breathing through the metal, or similar causes. The most common cause of death is systemic infection, and victims rarely survive longer than a few days. However, there were improvements in care, particularly drug Isotrex been. Some patients have survived to adolescence and, in rare cases, lived to adulthood.
In the past, the disease was always fatal, whether due to dehydration, infection (sepsis), restricted breathing through the metal, or similar causes. The most common cause of death is systemic infection, and victims rarely survive longer than a few days. However, there were improvements in care, particularly drug Isotrex been. Some patients have survived to adolescence and, in rare cases, lived to adulthood.
I found not that on the next page
http://www.smso.net/forum/showthread.php ...
Treatment and prognosis
In the past, the disease was always fatal, whether due to dehydration, infection (sepsis), restricted breathing through the metal, or similar causes. The most common cause of death is systemic infection, and victims rarely survive longer than a few days. However, there were improvements in care, particularly drug Isotrex been. Some patients have survived to adolescence and, in rare cases, lived to adulthood
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